從網路起始到社群參與,
透過創作和敘說讓愛滋平權更靠近—感染誌
人,天生就有說故事的能力以及聽故事的渴望;故事,能夠打動人心,拉近人與人之間的距離,並且增進人際間的理解!感染誌(HIVStory)便是在這樣的理念之下誕生。
自2016年於網路成立團體以來,感染誌透過雲端記錄HIV感染者的故事與生活樣態,並透過社群經營累積書寫群眾與合作者。到2019年正式立案,我們一直嘗試用各種不同以往的方式,將感染者和其親友的生命經驗透過網路平台及社群媒體傳遞給社會大眾。
在紀錄和書寫之外,我們也邀請國內外藝術家,透過不同類型的藝術和創作團體及志工培訓,增權賦能更多感染者、感染者親友與受愛滋病毒影響族群,讓社群夥伴在互動及創作中獲得療癒,在療癒過後看見更多內在的自己,並長出為自己發聲的力量。
此外,我們也在2018年開始實體倡議活動,自疾病平權「現+發聲NowON+」系列講座到肥皂箱短講,更舉辦「瘟疫的慢性處方」、「Rx:still life愛滋劇場行動」和「陽性意志POZ MOVEMENT」等藝術展演;從台灣社群活動參與到國際研討會發聲,我們一直透過愛滋獨立媒體經營及符合當代社會公民參與習慣的創新運動形式,持續探索疾病平權和新的對話可能。
我們相信:「透過對話互動,可以打破成見;唯有參與了解,才能消弭歧視。」感染誌會繼續在愛滋平權的道路上,搜尋不同的機會,開展更多的空間,並持續為愛滋平權的到來而努力,期盼有你一起加入。
“From Its Beginnings on the Internet to Community Participation—Toward Equity Through Creation and Narrative”
Humans have an inherent ability to tell stories and desire to hear them. Stories touch the heart, bring us together, and enhance understanding among people. Based on these humanistic values, the organization HIVStory was born.
Since its start on the Internet in 2016, HIVStory has been collecting the stories and documenting the lifestyles of those with HIV, and through community engagement, has attracted writing partners and collaborators. In 2019, after the organization was officially established, we continued using a variety of methods that convey the experiences of POZ individuals, of their families, and of their friends to the public through online platforms and social media.
In addition to collecting recordings and writings, we invite local and international artists and art groups to empower those affected by HIV with their unique art forms and volunteer training. Through these interactive and creative activities, community partners have healed, and gained self-knowledge and the confidence to advocate for themselves.
We also started in-person advocacy programs in 2018, including our NowON+ lecture and soapbox series focusing on equity for the community, as well as art activities such as the exhibitions Interminable Prescriptions for the Plague, and POZ Movement, and the theatrical production Rx: still life. From participating in Taiwanese community activities to speaking out at international forums, we seek out new possibilities for dialogue and HIV health equity as an independent media outlet, and launch innovative campaigns that are consistent with contemporary civic engagement.
We believe that only through dialogue and various forms of interaction can stereotypes and discrimination against people living with HIV be overcome. Taiwan HIVStory Association will continue to search for new opportunities and to develop more spaces, and keep striving for equity for POZ community. We hope that you will join us.
工作理念
愛滋發聲
透過社群培力與故事轉寫,增進愛滋感染者社群的社會事務參與度。
社會溝通
持續發行內容促進社會認識愛滋與愛滋感染者。
減少歧視與汙名
持續關注政府政策與社會愛滋歧視問題,並積極參與改變。